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PNI Awareness Weekend 1 - 3rd May 2009
Contact PNI ORG UK if you want to join in or go to the forum to list your event go to our Community Site to list it yourself
About PNI

What is PNI? What Causes PNI? What Cures PNI? Who Gets PNI?
How Many Get PNI? Does Counseling Help? How Long Does It Last?

The problem is that no one really knows the answers to
these questions !

  • When I first started this web site I had a stab at answering them
    myself as I thought that I might know - after all I had read all the
    books I could on PNI, suffered it myself and talked to many
    people about it, but I now realize that as time goes on I develop more
    questions than answers.

  • Please click on the links on the left to see what others
    say about PNI.
    I have by no means finished adding the data, web links and
    information I have collected about PNI.
    Please bear with me as I have just started to organize the
    data I have stored on my hard disk!

Research has been done that suggests that PNI affects as a conservative
figure, 1 in 10 women of any one birth and others feel that evidence it there
that this is only the tip of the iceberg, that the figure is nearer 1 in 7 or even
1 in 5 . But no one really knows for definite much else about PNI/PND,
well not enough anyway to answer the above questions for certain.


Much has been written about what PNI is, including by myself, about what the
causes are, what the symptoms are, what your your chances are of getting it,
are you likely to get PNI again with a subsequent birth, what the trigger factors
are, what helps to alleviate the symptoms,how partners, husbands and friends
and relatives can help, and how best to treat it.

Research into PNI?

But the truth is that very little actual research has ever been done into PNI and there are no definitive answers to the questions above.

Basically medical, psychological and other research , at least in this country and much of the western world, depends on the funding being made available to do it, and of course the will to do it. Obviously funding is more likely to be available if someone can make money out of the research being done, perhaps in terms of increased sales of a medication, or a certain therapy, or in the case of individual researchers - if they can sell their book on their research or get a better medical or other appointment on the strength of their research.

Unfortunately for us who suffer or have suffered PNI there is very little mileage in PNI for anyone , either from the point of view of more drug sales, increased credibility or sales of a book or a new therapy.

Books on PNI have a very limited audience, limited to those of us who suffer PNI, our friends and relatives and those who work with women who suffer PNI. This is because strangely and perhaps uniquely PNI is an illness that if you suffer it - or your partner, close relative or friend suffers it - you will have a burning interest in it, often to the point of obsession and read everything you can on the subject. But if PNI does not happen to you or anyone you love, you are completely indifferent to it and find the subject not only uninteresting but boring.

This is what I have found anyway!

In addition PNI is actually self limiting in that all women with PNI, do get better, and we mostly cope with it and confine the distress of PNI within our families - we are great at hiding PNI from everyone outside out immediate families - so there is no great push in society or the medical profession to fine a cure or an effective therapy, to find out why it happens or what can prevent it.

Why bother to put much energy or finances into an illness that only affects us behind closed doors? As Cara Aitken said in her book Surviving Post Natal Depression By Cara Aiken, Publishers Jessica Kingsley ISBN: 1853028614; 'At Home No One Hears You Scream'!

This is of course false economy as PNI does have an on going effect on our society, on the very fabric of parenting itself so vital for a successful country or nation - but an effect that is hidden.

So most of what anyone says about PNI, is actually just someone's opinion not fact , even in the case of medical professionals including perenatal consultants.
Of course if someone is working day in day out with those with PNI, this opinion is based on constant observation and has considerable value
. But most only work with women at a particular stage of PNI and with women who suffer in certain ways, so can not speak from a holistic view of PNI.

For instance Perinatal consultants and others who work with women in Perinatal Units and Mother and Baby Units only know those women with PNI when they are very acutely ill and will only meet those women who have puerperal Psychosis or who have very acute Post Natal Depression or anxiety to the extent that they can no longer function and need hospitalization and or emergency treatment. GPs and Health Visitors on the other hand deal with women who can manage at home with the some support and perhaps with the help of Anti- Depressants.

No one is yet seeing the bigger picture and no one is doing the research that is just so necessary!

Anyway rather than reinvent the wheel and give yet another opinion of what PNI is or what may help PNI
- although my views are based on over 10 years of intensely supporting women with PNI, but like everyone else, still an opinion not fact -

I am going to use this page instead to give you links to information, research and opinion about PNI, so you can make up your own mind. I will add to this page as I find more information on PNI.

What do Others Say About PNI?

However on my forum at: http://veritee.proboards7.com I am not so
objective, there I give you my opinion, based also on years of
supporting women with PNI , but only my opinion just the same.

So have a look at the links to what has been said about PNI and visit
my forum if you need support form women who know EXACTLY
what PNI is - because we have suffered it too!.

 


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  • Disclaimer:

We are not medical professionals or 'experts' in PNI, this site was founded by women who have suffered or are suffering Post Natal Illness. Therefore we urge you not to rely on any information you have gained from this web site or any other web site or information service, as a diagnosis.

Please go and see your GP, Health Visitor, Midwife, Counsellor, or Consultant for further information, diagnosis and treatment.

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